One Doctor’s Candid Conversation About the Emotional and Psychological Impact of a Glioma Diagnosis

Glioma treatment may impact “attention, concentration, and the capacity to communicate … so speech and language,” Dr. Burt Nabors, a neuro-oncology expert at University of Alabama Birmingham (UAB) Medicine, tells SurvivorNet.

Recognizing these challenges and seeking appropriate support can significantly improve the overall well-being of both patients and their loved ones.

The Emotional Toll of a Glioma Diagnosis

A glioma diagnosis often brings a wave of emotions, ranging from shock and disbelief to fear and sadness. Patients may struggle with feelings of loss, anger, or frustration as they come to terms with their condition and its potential impact on their lives. Loved ones, too, may experience emotional distress as they adjust to their new roles as caregivers and sources of support.

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Depression and anxiety are particularly common among glioma patients, as they face uncertainty about their prognosis and the effects of treatment. Some may also experience grief over changes in their independence, cognitive function, or physical abilities. It is essential to acknowledge these feelings and seek emotional support to help manage them effectively.

Who Should I Turn to for Support?

You don’t have to go through this journey alone. There are many professionals and support networks available to help you cope with the emotional and psychological impact of a glioma diagnosis, including:

• Neurologists and Oncologists: Your medical team can provide information about your condition, treatment options, and potential side effects. They can also refer you to specialists for additional support.
• Mental Health Professionals: Psychologists, psychiatrists, and counselors can offer therapy and, if necessary, medication to help manage depression, anxiety, or stress.
• Social Workers and Patient Navigators: These professionals can assist with practical concerns, including financial support, accessing resources, and coordinating care.
• Support Groups: Connecting with others who are going through similar experiences can provide comfort, encouragement, and valuable coping strategies.
• Friends and Family: Your loved ones can offer emotional and practical support, helping you manage daily tasks and providing a listening ear when needed.

What Neurological Changes Might Occur?

Gliomas and their treatments, including surgery, radiation, and chemotherapy, can affect brain function, leading to various neurological, cognitive, and behavioral changes.

“The tumor is interfering with how the brain is connecting,” Dr. Nabors explains. “As a result, patients are often using conscious energy. They’re having to deploy their conscious resources to think about things that previously they didn’t have to think about.”

Changes may include:

1. Cognitive Difficulties: Some patients experience problems with memory, concentration, or processing information. This can make everyday tasks more challenging and may require adaptations to maintain independence.
2. Behavioral and Personality Changes: Some glioma patients may notice shifts in mood, irritability, or impulsivity. These changes can be distressing for both the patient and their loved ones.
3. Motor and Sensory Impairments: Depending on the tumor’s location, patients may develop weakness, difficulty walking, or issues with coordination and balance.
4. Speech and Language Difficulties: Some individuals experience trouble finding words, speaking clearly, or understanding language.
5. Seizures: Gliomas can sometimes cause seizures, which may require medication for management.

Being aware of these potential changes allows patients and their caregivers to take proactive steps to address them.

Is There Any Treatment for These Changes?

Yes! While some neurological and cognitive changes can be challenging, there are various treatments and strategies to help manage them effectively.

“The best way for preservation of neurological function requires some kind of therapy — which is all activity based — physical therapy, occupational therapy, speech therapy,” Dr. Nabors explains.

Approaches might include:

• Rehabilitation Therapy: Physical therapy can help with mobility issues, occupational therapy can assist with daily activities, and speech therapy can address communication challenges.
• Cognitive Rehabilitation: Working with a neuropsychologist or cognitive therapist can help improve memory, attention, and problem-solving skills.
• Medications: Certain medications can help manage mood changes, seizures, or other neurological symptoms.
• Lifestyle Adjustments: Regular exercise, a balanced diet, and adequate rest can support overall brain health and emotional well-being.
• Psychological Support: Therapy, counseling, and support groups can help patients and caregivers navigate the emotional aspects of a glioma diagnosis and treatment.

You Are Not Alone

A glioma diagnosis is undoubtedly a difficult experience, but you don’t have to face it alone. Seeking support from medical professionals, loved ones, and support networks can make a significant difference in your quality of life. Remember to prioritize your emotional and psychological well-being just as much as your physical health. By addressing both the medical and personal challenges of this journey, you can move forward with resilience, hope, and the support you need.

Questions to Ask Your Doctor

• What side effects from glioma treatment should I be aware of?
• Is there anything I can do to reduce the likelihood of side effects?
• Should I seek rehabilitation therapy?
• What can I do if I am feeling depressed about my diagnosis?
• Are there local support groups or resources available?

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