38-Year-Old Woman Dismissed ‘Tingling’ Feeling In Face As Stress. An MRI Led To Her Brain Tumor Diagnosis

“Life was full of adventure. I’d been teaching abroad for 12 years, living in places like Chicago and now Turks and Caicos. I’d travelled to 66 countries and even made it to Antarctica – a dream come true. But in October 2022, I started experiencing tingling in my left cheek,” she recently told Brain Tumor Research.

“At first, I thought it was just stress, but by January 2023, the pain had spread to my nose, eye, and head. It was so intense it would stop me in my tracks, leaving me keeled over, clutching my head in agony.”

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Shaw credits her friend for encouraging her to visit a doctor, which led her to see a neurologist, who suggested an MRI was needed.

She explained further, “The scan revealed a meningioma, a tumour in a rare and dangerous location near my brain stem and left optic nerve. I was in denial and insisted they had the wrong person, but they insisted it was true and told me to see a neurosurgeon as soon as possible. I dreaded phoning my parents. We speak like clockwork, so any unexpected call would immediately set off alarm bells. Breaking the news to them was one of the hardest things I’ve ever done.

“Luckily, the father of a student in my class was a neurosurgeon at the hospital I had been referred to, and he helped me get an appointment. When I met with him, I had my parents on FaceTime and my friend, Jen, by my side for support. He explained that my tumor was a nine out of ten in terms of difficulty to remove and that only 2% of cases are found in this location. It didn’t fill me with much hope.”

Shaw made sure to understand the options she had and even spoke with another doctor, who ultimately performed a 10-hour surgery in April 2023.

“I woke with 50 staples in my head, overwhelmed by gratitude – 95% of the tumour was gone, and I was alive,” Shaw recounted, noting it wasn’t easy to recover as she suffered from double vision and memory loss.

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Three months later, in July 2023, she learned that the tumor had grown six millimeters in size, leading her to undergo radiation therapy.

“The constant hospital visits and uncertainty became overwhelming, so I quit my job and returned to England to focus on recovery. For nine months, I had nothing but time to heal. Eventually, I found a therapist who specialized in cancer patients, and those sessions helped me cope,” Shaw explained.

“My scans showed stability, first at three months, then at six. Now, a year after the radiation, my tumour remains stable. It’s been a long and unpredictable journey, but for now, I hold onto hope.”

She added, “That’s why I took on the six-day Sahara Trek challenge. I love to travel, and I am not afraid of a challenge.

“My mindset is that nothing can be worse than brain surgery. I’ve survived that, radiation, 11 MRIs, and having titanium in my head. If this helps raise awareness and funds, why not?”

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Understanding Meningiomas, Symptoms, & When To See Your Doctor

Meningiomas aren’t technically brain tumors, Dr. Suriya Jeyapalan, director of medical neuro-oncology at Tufts Medical Center in Boston, Mass., previously told SurvivorNet; they are tumors that arise from the meninges the membranes that surround the brain and spinal cord. But the tumors can compress or squeeze the adjacent brain, nerves and vessels.

Most brain tumors aren’t actually cancerous, according to the American Brain Tumor Association. Less than one third about 32% of brain tumors are considered cancerous, or malignant.

If the tumor is made up of “normal-looking cells,” that means the tumor is benign.  However, those kinds of tumors may still require surgery.

The signs and symptoms of a meningioma depend on its location, according to the National Cancer Institute, and may even be subtle at first.

Even though a meningioma isn’t technically a brain tumor, the symptoms are relatively the same as other brain tumors, such as a glioblastoma. The symptoms of a brain tumor, or even brain cancer if the tumor is malignant, can frequently and easily change, Jeyapalan tells SurvivorNet.

“But for I think this is the take home message for I think a lot of patients: Brain cancer is actually really rare,” Jeyapalan explained. “Lung cancer, breast cancer, colon cancer, are much more common.”

“Everybody’s always scared about getting their brain tumor and, you know, ‘Oh, should I be using my cell phone or what not,’ and I tell them, ‘No, you should be much more scared about the fact that you’re, you know, you’re hypertensive, you’re diabetic, you have high cholesterol, you’re overweight, you’re not exercising enough,” she added.

Symptoms can include:

• Changes in vision seeing double or blurriness
• Headaches, especially ones that are worse in the morning
• Hearing loss
• Memory loss or confusion
• Loss of smell
• Seizures

It’s recommended that you see a doctor if you have the sudden onset of seizures, or changes in vision or memory as it could be a meningioma; most of the time, meningioma symptoms develop slowly over time, but sometimes can require emergency care.

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Make an appointment with your doctor if you feel you have symptoms, such as headaches that worsen over time, that concern you. But most times, meningiomas are only discovered on scans for reasons that turn out to be unrelated to the tumor.

Making Sense of a Brain Tumor Diagnosis

According to the American Society of Clinical Oncology (ASCO), brain tumors account for 85-90% of all primary central nervous system (CNS) tumors. They can either be cancerous (malignant) or non-cancerous (benign), and depending on where the tumor forms on the brain, doctors determine its type, potential symptoms, and potential treatment.

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Signs and Symptoms of Brain Tumors

Brain tumors impact a person’s brain function and overall health, depending on their size, type, and location within the brain. Tumors that grow big enough and disrupt normal central nervous system functioning can press on nearby nerves, blood vessels, or other tissues. The disrupted central nervous system can present in various ways, making walking or maintaining balance difficult.

However, it’s important to know that brain tumors do not always cause symptoms.

Other signs of brain tumors may include:

• Headaches
• Difficulty speaking or thinking
• Weakness
• Behavioral changes
• Vision changes
• Seizures
• Loss of hearing
• Confusion
• Memory loss

Types of Cancerous and Non-Cancerous Brain Tumors

A brain tumor can affect you differently depending on its location and if it is cancerous. Some brain tumors are non-cancerous (or benign). According to the National Cancer Institute, some examples of these types of brain tumors include:

• Chordomas are primarily benign and slow-growing and are often found near the tailbone or where the spine meets the skull.
• Craniopharyngiomas are rare, slow-growing tumors that don’t spread to other parts of the brain or body. They form near the pituitary gland near the base of the brain.
• Gangliocytomas are rare tumors of the central nervous system that tend to form on the temporal lobe (the left or right side of the brain).
• Glomus jugulare are rare and slow-growing tumors.
• Meningiomas are rare brain tumors that usually form on the outer layer of tissue that covers the brain (dura mater).
• Pineocytomas are rare and slow-growing tumors located in the pineal gland near the middle of the brain.
• Pituitary adenomas are slow-growing brain tumors of the anterior pituitary located in the lower part of the brain.
• Schwannomas are rare tumors that grow on the cells that protect nerve cells. They are called Schwann cells.
• Acoustic neuromas (vestibular schwannoma) are slow-growing tumors that develop from the nerves that help balance and hearing.

Other brain tumors are malignant or cancerous. These kinds of tumors include:

• Gliomas are the most common form of cancerous and aggressive primary brain tumors.
• Astrocytoma (glioma) forms in astrocytes (star-shaped cells). Depending on how aggressive or fast they grow and impact brain tissue, these tumors are classified into four grades.
• Ependymomas are tumors classified into three grades depending on how aggressive or fast they grow.
• Oligodendroglioma tumors are classified into grades depending on their growth speed. Grade 2 oligodendroglioma tumors are slow-growing and can invade nearby tissue, but they may not present symptoms for many years before detection. Meanwhile, grade 3 oligodendroglioma tumors proliferate.
• Medulloblastoma tumors are classified into four different grades depending on their aggressive nature or how quickly they grow.
• Glioblastoma, which is considered a central nervous system (CNS) tumor, is the most common and aggressive brain tumor in adults.

Understanding Gliomas and How They Are Graded

A glioma is a type of tumor that originates in the central nervous system, specifically in the brain or spinal cord. They originate in glial cells. Glial cells are supportive cells in the brain which serve to protect and maintain the neurons. They perform these tasks by maintaining the right chemical environment for electrical signaling, creating protective coverings for neurons, and removing debris and acting as scavengers. Neurons are the key cells in the brain and spinal cord which are responsible for transmitting messages in the brain. While the signals and messages that allow you to think, move, and speak are created by neurons, the glial cells are critical in maintaining brain function.

So essentially, a glioma is a tumor that comes from the brain’s own support cells.

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“Glioma is a broad term that refers to a whole range of different types of primary brain tumors,” Dr. Alexandra Miller, Director of the Neuro-Oncologist Division at NYU Langone Health, tells SurvivorNet. “So, they’re tumors that originate in the brain and very rarely spread outside the brain to other parts of the body.”

Those glial cells, like many other cells in the body, have the potential to grow abnormally and form a mass, and that is when a glioma is formed. Gliomas, as they arise from the brain or spinal cord, are considered a primary brain tumor. They do not spread from elsewhere in the body. Relative to other cancers such as breast, prostate, and lung, primary brain tumors are relatively uncommon with 80,000 diagnosed per year in the United States. Of the primary brain tumors diagnosed each year, gliomas comprise approximately 25%.

The Grading System of Gliomas

Gliomas are graded on a scale of I to IV, with higher grades indicating a more aggressive tumor. This grading is based on several factors including the type of glioma, the genetics of the cancer, as well as the appearance of the tumor cells under a microscope. The more abnormal the cells look, the higher the grade, and the faster the tumor is likely to grow and spread. Here’s a quick overview:

• Grade I-II gliomas – These are considered low-grade and tend to grow slowly. “The grade one is a very indolent, benign tumor that basically can be cured with surgery alone,” Dr. Henry Friedman, Deputy Director of the Preston Robert Tisch Brain Tumor Center at Duke, tells SurvivorNet.
• Grade III gliomas – These are considered high-grade and tend to grow more rapidly. Grade III gliomas are typically classified as malignant and typically require more aggressive treatment which can include surgery, radiation, and chemotherapy.
• Grade IV gliomas – These are the most aggressive gliomas which are locally aggressive and require treatment intensification. Glioblastomas are the most common grade IV glioma, “which is by far the most well known and most feared tumor in the lay population and quite frankly, the medical population as well,” Dr. Friedman explains.

Although Grade IV gliomas are the most aggressive glioma and may require several types of treatment including surgery, radiation, and chemotherapy, there can be challenges in treating low grade gliomas as well. When making decisions on treatment, several factors are taken into consideration including location of the tumor, ease of surgery and ability to resect, neurologic deficits, patient age, tumor size, and overall health.

Treatments for Brain Tumors

Treatment options for brain cancer depend on a variety of factors, including the size and type of the tumor as well as the grade of the tumor.

Surgery, radiation, and chemotherapy are options doctors use to treat brain tumors. Cancer warriors are encouraged to talk to their doctor about their situation and the best treatment options.

The prognosis for brain cancer, or how likely it is to be cured, depends on a few things, including:

• The type of brain tumor
• How fast the brain tumor is growing
• The tumor’s location
• If there are DNA changes in the cells of the brain tumor
• If the entire tumor can be removed with surgery
• Your overall health

Your doctor will be able to help you understand your specific and unique circumstances and how they relate to your prognosis.

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Resilience Through Adversity

SurvivorNet specializes in covering the lives of people who overcome seemingly insurmountable obstacles. Often, seeing the positive helps them maintain their resilience.

Dr. Zuri Murrell, an oncologist at Cedars-Sinai Medical Center, spoke to SurvivorNet about the role of a positive outlook on survival rates: “I’m pretty good at telling what kind of patient are going to still have this attitude and probably going to live the longest, even with bad, bad disease. And those are patients who, they have gratitude in life.”

Resilience: Staying Positive Despite Adversity

Meanwhile, resilience is an important trait, but not the easiest to build. When building resilience, the ultimate goal is not to avoid tough times, but to be able to bounce back from them. And yet, when they are faced with an overwhelming, life-changing situation, how do people shift their view? How do they learn to see the problem as temporary, rather than permanent, and figure out a solution?

It’s complicated, because building resilience is more about your mental and emotional fortitude than anything else. According to the American Psychological Association, “the resources and skills associated with more positive adaptation (i.e., greater resilience) can be cultivated and practiced.” In other words, resilience is not something you’re born with, which should be encouraging. Instead, after every challenge in your life, you build more and more resilience to those hard times.

Building resilience is down in the same way you build muscle, through patience and steady exercise of the skill.

Some lessons learned from other cancer warriors SurvivorNet has covered include being willing to learn, spending time with people who inspire you, allowing yourself to grieve, being flexible, and leaning in to your community for support.

Contributing: SurvivorNet Staff

Learn more about SurvivorNet's rigorous medical review process.

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